Skip to main content

Worst Diagnosis they could of made

Worst Diagnosis they could of made

Life just keeps on kicking me down, the latest is losing my Little Star. I know she was only a Cockatiel, but she was my support Bird. Being laid by 2 Rescue's Lou and Lola, back in 2013, she was disowned in the final day in the Egg. I had to learn a lot of stuff very quickly. Egg assist hatching is risky, but I did it and for the first few hours, Mum and Dad looked after her. But sadly she stopped breathing and I hand to learn Bird CPR on the go and on a very small chick. I got her breathing again, but 12 hours later she stopped again and I had another go. and it happen again. The 3rd time I got her breathing worked and I had to take over feeding. Although Mum would feed her every now and then, it was not enough. I had to be there every 2 hours without fail for 12 weeks. getting up at 1 am, 3am, 5 am etc, making fresh hemp (egg miz), and feeding.

This created a bound that meant no matter where I was, Star would come and find me. When I took Delwyn in, this changed a little, but she would always spend a hour or 2 on my shoulder, was a regular on the Matchday without you guys knowing. Well wednesday I noticed something wasn't right, but no Vet would see her and no Avian Vet on. Spending 2 nights with no sleep with her, keeping her company, hand feeding again, waiting for the Vet to ring (non available every time I called) Yesterday evening she Gave up eating, just refused, but cuddled up to me for 9 hours. Sadly at 3.36 this morning her heart stopped, it was over.No final goodbye, nothing. However at 3.47am she moved I was so over joyed, hoping it meant she would make it to the morning for a Vet. Sadly not, She climbed up, her heart was weak and she cuddled in with the final goodbye. at 4:04 she was properly gone.

I don't want to take my meds, or eat or drink, Just want to tell people the reason for the last 13 years has gone, my support Bird no longer there. I have to make a decision on the other Rescue's Vinnie, Rio, Bluey and the Cockatiels Delwyn, Lou, Nibbles, Pippa (1% Chance of Survival and still here 9 years on) and Dominic and Finchey Jr (Zebra Finch). Because I can not take this shote no more, it hurts because they go so fast, no warning, no time to prepare. I also don't think I am the right person to take them forward. I done the hard work of getting them used to Humans and Hads again (Apart from Delwyn). But not having the Money to travel 50 Miles to get an Avian Vet has proved, I am not the right person. Also I clearly didn't see the signs she was unwell sooner and I can't forgive myself that. I just been wrapped up in Football and stuff.

So with that, I am taking a step back from everything, weighing up my options. Putting the Birds first. Need to decide, Go on and hope that these last Rescues (Defo not taking in anymore) live a lot longer or if they'd be best elsewhere, with someone that has access to a Car and ready cash to get them treatment no matter how far they have to travel. Or offering them to a Bird Zoo and hope they get a better life. I failed Star. So for now, I will just reading on here, Football and PNE is going to take a back seat whilst I decide and decide what the future holds for me, because it just looks like pain and heart break. This one has beat me down to worthless, 30 Rescue's of varying disabilities, 4 (1 by me) Raised Cockatiels, 9 Zebra Finches) in over 17 years. This last 5 years so many have succumb to Disabilities or old Age, Something I should of Factored in. Delwyn is always going to be very risky, he has surprised all the Vets he's seen, but he is high risk due to injuries. Vinnie is fast recovering, and the rest should be OK to be rehomed, Although Finchy Jr is 13, life expectancy is 5-10 years, he's 2 years off the Max they should live, but unofficially his dad was 17-19 when passed away (When found, Vet Said he was about 10 via DNA Testing and we had him 9 years).

Sorry what a rant, but I will be able to come and read what I have put when I have a clearer head and ready to face the decisions. But for now, I will just be reading until I decide the future and I may come back next season to do matchday, the reason I started to post this, ramble over. Takecare all.
 
Bloody hell mate, that's a tough read so my heart is breaking for how you must be feeling.

I hope some food, fluids and sleep help you reflect in time with happiness on the life she had with you. Sounds like it was very special indeed and because it was so special it's going to be harder to process at the start.

Take care please, you're a good egg (if you'll pardon the pun)
 
Its been a while, So as you know bad luck follows everywhere I go. Well the Tests I had on my arm last year, that the results where lost, Found by the New GP. Well I had the follow up appointment. Results where not good to start with. The Doctor at the MSK Clinic asked if I had any follow up, Normally they start you on hand exercises (Pack it in), then try to slint the arm to untrap the Nerves (Not 1 but 2). NOPE, he was like oh Shit, I asked why and said the results showed muscle was already being killed in the hand due to the Nerves being Trapped. Which means for 14 Months its been continuing. So by passing all the Exercise etc and on the shortlist for an Operation. They will need to Slice the Arm open, untrap the Nerves and cut grooves in the Bone to stop then retrapping. But this is to prevent/Slow down further damage.

Don't worry Doc, its my Left Side, I am right handed. (NOPE) its both Side;s. How do I get nerves trapped in both sides. Seizures is the Answer. So they have a few things to look at, 1 where the Nerves are Trapped, and risk of Damaging other Nerves which could Paralyse or cause Brain issues. Can they prevent a Seizure during the opp, if no then risks go up. Will they need to do both Sides at the same time (Recovery is 18 months on Average) so it's 1 Arm at a time, 3 Years or if they both bad, 18 months of having someone looking after me. Then there is the risk of Seizures after treatment that could cause damage to the Operated area. And I need to come off ALL Medication for 2 weeks before and for 13 weeks after as I will be on High dosage of Pain Relief.

So sounds like hey just don't do it? Well sadly not, as the muscle dies off the hands become weaker and I will lose use of them over time and the Spread will cause issues elsewhere.

Gun to the back of the head it is. On top of Losing my Star Girl and Spark, 2026 is looking like a Bloody Great year. Waiting list is 6-12 Months, but they want me in asap, so don't know if they have fast track or looking at putting me on a cancellation call list.

Thats where I am in life. But still fighting on.
 
FootballcrazyP_ said:
Its been a while, So as you know bad luck follows everywhere I go. Well the Tests I had on my arm last year, that the results where lost, Found by the New GP. Well I had the follow up appointment. Results where not good to start with. The Doctor at the MSK Clinic asked if I had any follow up, Normally they start you on hand exercises (Pack it in), then try to slint the arm to untrap the Nerves (Not 1 but 2). NOPE, he was like oh Shit, I asked why and said the results showed muscle was already being killed in the hand due to the Nerves being Trapped. Which means for 14 Months its been continuing. So by passing all the Exercise etc and on the shortlist for an Operation. They will need to Slice the Arm open, untrap the Nerves and cut grooves in the Bone to stop then retrapping. But this is to prevent/Slow down further damage.

Don't worry Doc, its my Left Side, I am right handed. (NOPE) its both Side;s. How do I get nerves trapped in both sides. Seizures is the Answer. So they have a few things to look at, 1 where the Nerves are Trapped, and risk of Damaging other Nerves which could Paralyse or cause Brain issues. Can they prevent a Seizure during the opp, if no then risks go up. Will they need to do both Sides at the same time (Recovery is 18 months on Average) so it's 1 Arm at a time, 3 Years or if they both bad, 18 months of having someone looking after me. Then there is the risk of Seizures after treatment that could cause damage to the Operated area. And I need to come off ALL Medication for 2 weeks before and for 13 weeks after as I will be on High dosage of Pain Relief.

So sounds like hey just don't do it? Well sadly not, as the muscle dies off the hands become weaker and I will lose use of them over time and the Spread will cause issues elsewhere.

Gun to the back of the head it is. On top of Losing my Star Girl and Spark, 2026 is looking like a Bloody Great year. Waiting list is 6-12 Months, but they want me in asap, so don't know if they have fast track or looking at putting me on a cancellation call list.

Thats where I am in life. But still fighting on.
Click to expand...
Keep strong Crazy….

Trust the professionals 👍🏻👍🏻
 
70 (from last week) weeks upto waiting list, but the pain is 8/10 today. So normally according to the Doctor, the pain is in the hand, but mine is in my Hand, arm and shoulder, so sent for an MRI. and the nerve is being pinched in my neck/shoulder, elbow, and wrist. Does that mean I can get seen sooner, nope, it means all the muscles in my left arm are not getting the supply they need, hence the pain. its just a constant pain. All they can give me is co-codamol. might as well give me Smarties. Originally it was just in my hand but then pain started spreading up the arm. Then last Tuesday I had a seizure and its been in my whole arm since.

So anyone got any tips for Trapped nerves? because the exercises they given me, just hurt and as I can't move my arm behind my back they pointless. And they got me back on Suicide watch, have to answer the phone when they ring, because I told them a gun to the back of the head would fix everything. Good news is I got someone coming in to help my Wife and the food they cooking is delicious and not burnt (haha she can't slap me for that). But everything I type online is being read as I type it. Hence why I not posting as much.
 
FootballcrazyP_ said:
70 (from last week) weeks upto waiting list, but the pain is 8/10 today. So normally according to the Doctor, the pain is in the hand, but mine is in my Hand, arm and shoulder, so sent for an MRI. and the nerve is being pinched in my neck/shoulder, elbow, and wrist. Does that mean I can get seen sooner, nope, it means all the muscles in my left arm are not getting the supply they need, hence the pain. its just a constant pain. All they can give me is co-codamol. might as well give me Smarties. Originally it was just in my hand but then pain started spreading up the arm. Then last Tuesday I had a seizure and its been in my whole arm since.

So anyone got any tips for Trapped nerves? because the exercises they given me, just hurt and as I can't move my arm behind my back they pointless. And they got me back on Suicide watch, have to answer the phone when they ring, because I told them a gun to the back of the head would fix everything. Good news is I got someone coming in to help my Wife and the food they cooking is delicious and not burnt (haha she can't slap me for that). But everything I type online is being read as I type it. Hence why I not posting as much.
Click to expand...
That pain is the absolute worst, I had similar, it started off with a ache in the right hand side of my neck but the spread down my whole left arm, into my left shoulder blade and round into my chest, I did wonder if I was actually having a heart attack! My fingertips were tingling for well over a year after. Managed to get a scan done on my neck and they found the discs in my neck were narrowed, moderate to severe degenerative changes and osteophites. Luckily it released itself. But was told by a physio to do neck exercises, look as far left and right as I could, look up with my fingers putting light pressure on my forehead, look down with my hand putting light pressure on the back of my head, tilt my head to both sides to the right with my right palm putting light pressure on the left side of my head then to the left with my right palm to the right temple area. I do these when there is stiffness or tension building. They might help, but might be a good idea to check as well, given your other conditions. Hope your feeling better soon 👍
 
I did have a nerve trapped in my right shoulder, again bloody painful, for that one I had to raise my slightly bent right arm to shoulder height across my chest and put my left hand ( or part of my left fore arm behind my right elbow and apply pressure, it was bloody painful to do but it helped.
 
Probably not in the same vein but twice last year and both episodes lasted 6 or so and i could barely walk and put one left foot in front of the other.
On one long weekend Caravan break i could hardly leave the Van, leaving Donna to do her own thing!
I thought it was my arthritis but really that's just a dull nagging pain - these where excruciating pains. In the hip (where the arthritis is) and particularly down the leg.
So i.
Went to the Docs, and had some physio for 'arthritis' pain.
However:

Turns out after a lot of self investigation, that it was probably Sciatica.
I know they (health professionals) don't like it but they more or less use the same tools we now have access too!
I was actually quite disappointed with the NHS for once.
 
deepdaledreamer said:
Probably not in the same vein but twice last year and both episodes lasted 6 or so and i could barely walk and put one left foot in front of the other.
On one long weekend Caravan break i could hardly leave the Van, leaving Donna to do her own thing!
I thought it was my arthritis but really that's just a dull nagging pain - these where excruciating pains. In the hip (where the arthritis is) and particularly down the leg.
So i.
Went to the Docs, and had some physio for 'arthritis' pain.
However:

Turns out after a lot of self investigation, that it was probably Sciatica.
I know they (health professionals) don't like it but they more or less use the same tools we now have access too!
I was actually quite disappointed with the NHS for once.
Click to expand...
Sciatica is the worst, I mean this is painful and my fingers are numb but I wouldn't swap for Sciatica. No thanks, had it many years a go. They say once you had it comes and goes. I am lucky it has not.
 
FootballcrazyP_ said:
Sciatica is the worst, I mean this is painful and my fingers are numb but I wouldn't swap for Sciatica. No thanks, had it many years a go. They say once you had it comes and goes. I am lucky it has not.
Click to expand...
Not had any problems with that now since last year but boy was it excruciating - i have never known pain like it.
I live with arthritis in various joints but that was on a totally different level!
Took 'AI' to be able to distinguish between 'nagging; but reasonably low level constant pain to that, that was off a level where you could barely put one foot in front of another - and that is NOT arthritis.
 
FootballcrazyP_ said:
Sciatica is the worst, I mean this is painful and my fingers are numb but I wouldn't swap for Sciatica. No thanks, had it many years a go. They say once you had it comes and goes. I am lucky it has not.
Click to expand...
Yep got that in one leg, the pain went down to my ankle, went on for over two to three months, asked to be given other duties at work, no joy. Then it started in the other leg as well, that’s when I went on the sick. Best thing I did was leave that job
 
Had my arm Scam, 7 Minor Clots/Need investigation, 6 nerve damage Pinched points 2 in Shoulder, 2 in Elbow, 1 in Wrist and 1 in hand near fingers. 3 Fractures/Badly healed Breaks in the Arm that I never knew had done, 1 is causing a Pinch point. Will need Carpal Tunnel Surgery and Cubital Tunnel Surgery. The guy asked how I was living with the pain and I said, just grown used to it, hurts but got to keep going. Results will be sent to GP, Neurology, another one that deals with Nerve and Mental Health. What was meant to take 20 Minutes at 2.45, I was still there at 6 having more scans. When I told him I was Cycling Preston to Blackpool for Domestic Abuse Awareness later this year, he said I am not, I say watch me. But at least its results and now when I tell them pain is level 8/10 they know I mean it.
 
FootballcrazyP_ said:
Had my arm Scam, 7 Minor Clots/Need investigation, 6 nerve damage Pinched points 2 in Shoulder, 2 in Elbow, 1 in Wrist and 1 in hand near fingers. 3 Fractures/Badly healed Breaks in the Arm that I never knew had done, 1 is causing a Pinch point. Will need Carpal Tunnel Surgery and Cubital Tunnel Surgery. The guy asked how I was living with the pain and I said, just grown used to it, hurts but got to keep going. Results will be sent to GP, Neurology, another one that deals with Nerve and Mental Health. What was meant to take 20 Minutes at 2.45, I was still there at 6 having more scans. When I told him I was Cycling Preston to Blackpool for Domestic Abuse Awareness later this year, he said I am not, I say watch me. But at least its results and now when I tell them pain is level 8/10 they know I mean it.
Click to expand...
Sounds horrific. Surely they can get you on some stronger meds now? I have a damaged nervous system which gives me a lot of pain. They put me on 1200mg of gabapentin. That certainly took the edge off the pain!!

Good luck pal, keep fighting.
 
Little update - Some extra results from the Scans, Confirmed Inflammation of the left Shoulder, Cubital Tunnel Syndrome, Arthritis in left Hand and signs of an Autoimmune Condition eating me inside, which means I can't have the operation on the Cubital Tunnel, will have to suffer. Not the news I wanted, but it is what it is. I have a Doctors appointment booked for the 6th to discuss moving forwards and get the name hopefully of the Autoimmune Disease which is not what they first thought. (I know Arthritis is an AD as well)
 
Anyone had Mental Health appointments moved to over the phone. I declined, but the last 2 Appointments they've tried to say the Staff have been ill so working from Home. I have declined both appointments, because I don't feel comfortable talking about my issues when the Windows are open and the Neighbours can hear. It's fine on here, None of you would know me (I don't think). So if you have had appointments over the phone, what's different (apart from the obvious), am I right to tell them I want them in person. I just not convinced they can get a true picture without actually seeing the person.
 
FootballcrazyP_ said:
Anyone had Mental Health appointments moved to over the phone. I declined, but the last 2 Appointments they've tried to say the Staff have been ill so working from Home. I have declined both appointments, because I don't feel comfortable talking about my issues when the Windows are open and the Neighbours can hear. It's fine on here, None of you would know me (I don't think). So if you have had appointments over the phone, what's different (apart from the obvious), am I right to tell them I want them in person. I just not convinced they can get a true picture without actually seeing the person.
Click to expand...
It seems to me that a practitioner wouldnt just be listening to words but would even more so be reading body language etc.

Seems unprofessional to me.
 
raefil said:
It seems to me that a practitioner wouldnt just be listening to words but would even more so be reading body language etc.

Seems unprofessional to me.
Click to expand...

Thats what I think. I assume they will discharge me if I don't give in. But I don't know i'm having issues' only people around me do. I feel normal, maybe a little angry. So I don't want over the phone, I want to know what I am taking is doing its job.
 
I wasn't going to say anything on here (Last year was crazy enough), But I'm feeling good so I will. So in October, I am riding Preston to Blackpool and the Lights for Domestic Abuse Awareness. dressed as a Bee (because i'm a fucking idiot and a soft touch for Charity). But At 21 plus stone, drinking 5-8 Cans of Dr Pepper a day, I had to make some changes or I wouldn't make Blackpool Road never mind Blackpool.

So 6 Weeks ago I quit the Dr Pepper, Straight Quit, been on Water ever since. Last week I started Exercising, Using the Wii, exercise Bike and Weights. 1 Week in I lost half a Stone and managing 30 Minutes on the exercise Bike on Medium. Days 1 I managed 5 Minutes on Easy. When I weighed myself and saw I lost weight, I was happy, because Im on meds that put weight on you. So heading in the right direction and got 7 weeks to get fit enough to ride a Bike 18 plus miles.

Even Crazier I am using Chat GTP to set my exercise routine.

Thanks for reading.
 
FootballcrazyP_ said:
I wasn't going to say anything on here (Last year was crazy enough), But I'm feeling good so I will. So in October, I am riding Preston to Blackpool and the Lights for Domestic Abuse Awareness. dressed as a Bee (because i'm a fucking idiot and a soft touch for Charity). But At 21 plus stone, drinking 5-8 Cans of Dr Pepper a day, I had to make some changes or I wouldn't make Blackpool Road never mind Blackpool.

So 6 Weeks ago I quit the Dr Pepper, Straight Quit, been on Water ever since. Last week I started Exercising, Using the Wii, exercise Bike and Weights. 1 Week in I lost half a Stone and managing 30 Minutes on the exercise Bike on Medium. Days 1 I managed 5 Minutes on Easy. When I weighed myself and saw I lost weight, I was happy, because Im on meds that put weight on you. So heading in the right direction and got 7 weeks to get fit enough to ride a Bike 18 plus miles.

Even Crazier I am using Chat GTP to set my exercise routine.

Thanks for reading.
Click to expand...
Awesome work Crazy, well done!! When you see some results it helps to keep the motivation, so good on ya and I hope you keep it up!! 💥
 
FootballcrazyP_ said:
I wasn't going to say anything on here (Last year was crazy enough), But I'm feeling good so I will. So in October, I am riding Preston to Blackpool and the Lights for Domestic Abuse Awareness. dressed as a Bee (because i'm a fucking idiot and a soft touch for Charity). But At 21 plus stone, drinking 5-8 Cans of Dr Pepper a day, I had to make some changes or I wouldn't make Blackpool Road never mind Blackpool.

So 6 Weeks ago I quit the Dr Pepper, Straight Quit, been on Water ever since. Last week I started Exercising, Using the Wii, exercise Bike and Weights. 1 Week in I lost half a Stone and managing 30 Minutes on the exercise Bike on Medium. Days 1 I managed 5 Minutes on Easy. When I weighed myself and saw I lost weight, I was happy, because Im on meds that put weight on you. So heading in the right direction and got 7 weeks to get fit enough to ride a Bike 18 plus miles.

Even Crazier I am using Chat GTP to set my exercise routine.

Thanks for reading.
Click to expand...
Cutting out liquid calories is an absolute cheat code for weight loss. You never realize how many you are consuming. Nicely done!
 
Back
Top